Archive | January, 2020

Focusing on the grace…not so much the race

17 Jan

This is a post I’ve wanted to share for a long time. I’ve written probably fifteen iterations of it over the last few months and every time I let fear win…I delete…I walk away…I keep it to myself.

I’ve not landed on a word for 2020 yet. I had one last year…I’ll probably decide on one this year, but it’s something I do with prayer and intention…but I can tell you that a theme I keep hearing in music, in scripture, in prayer and in life – is SHARING. So, I’m going to DO THAT. When I feel something resonate with me that I hope can help others, I have a natural inclination to want to share it. So here it is today:

Having something wrong with you that others cannot see is a struggle. When I show up at Bible Study with my hair curled, a dress on and my shoes actually match…you don’t know that I had to wash my hair the night before because there’s no way I can wash, dry and fix my hair without a break in between. You don’t know that I had to pick out my clothes the night before to make it easier for myself the next morning or that I decided against makeup because holding my arms up for extended periods of time makes me exhausted. You don’t see the tears I cried last night because I didn’t feel like cooking dinner for my family because I knew it would wear me out and that a bath would be out of the question….because even that is tiring. You don’t see the depression that cycles from missing out on life events…the anxiety that comes with planning anything – literally anything – because I am afraid that when it rolls around I will be too fatigued to show up. You don’t see the worry that comes from letting people down and fearing that they won’t give you grace – again.  You don’t see the disappointment from getting excited about getting out and doing something but then it’s “one of those days” and there is NO way you can make it out of the house….and quite frankly, the bed.  You don’t see the way I miss the race of deadlines and a work family and last minute presentations.

Chronic fatigue syndrome is a THING.  It is one of MY things and I have truly tried to own it.  To just live with it…to give MYSELF the grace that I’d extend to any of my loved ones.  To pace myself. To do what I can and focus on THAT.  Focusing on the things I can’t do…the things I run out of steam for…the things that do not get crossed off of the list? That leads to frustration, shame and sadness.  Which puts me in a funk…which leads to a depressive state…which….are you seeing a pattern here?

When you see someone with a cast or a sling or hear them coughing or see visible scars – is your inclination to judge them or feel a certain pang of hurt for their illness/injury?  Just because all scars are not visible does not mean that we don’t all have them and need that sympathetic/empathatic smile you’d give someone that you knew was going through something based on their appearance.  I have to tell you, I barely made it through this afternoon.  I overcommitted myself this week and I was struggling this afternoon.  Once I had the chance, I got comfy and I slept for HOURS. I needed it. It didn’t mean I am lazy or worthless or unproductive.  It meant I was taking care of a need.  I needed rest.  But don’t think I didn’t go to my calendar, make a line for rest, draw a box AND CHECKED IT OFF.  Focus on what you CAN do, friends.  It makes a world of difference.

*******SIDE NOTE TANGENT BELOW*******

While I’m at it…a reminder…check on your friends.  The sick, the well, the strong, the weak.  The busy, the bored, the employed, the retired, the traveling, the homebodies….ALL THE PEOPLE.  Ask how they are…and listen to the answer.  And y’all…if someone asks how you are, TELL THEM.  I don’t know about you but I mean it when I ask someone how they are really doing….I want to hear the truth.  I don’t want to a hear a standard answer or a flippant reply.  I want to know HOW they ARE….how can I be praying for them….have the prayers I’ve been praying been answered?  I value my friendships…I value my prayer time…and I want to be sure that my friends know I am praying for them with intention, as specific as possible and as often as I say I am.

Heart Broken Week (Pt. 5)

14 Jan

So – I am WAY behind, what else is new?

The last time I updated Mike and I were still in NC and he has had a couple of appointments since then so I thought I’d just type out a little update for those that have asked…and for me too…because my memory…YEP!

Since we returned home to Texas he has been seen by his Primary Care Physician and his Pulmonologist here in College Station.  His PCP reviewed his labs, notes and all the information from the cardio team and did not find anything alarming or that he felt that was missed.  He agreed that on paper, Mike was not at risk for a heart attack…which is one of those things I keep hearing but also keep thinking of all the ways we could live better, exercise more, blah blah blah…but in the end, I truly believe that was God’s plan.  All the things are, and that was His plan for my hubby on that day and I will just have to rejoice and be glad in it.  Okay?  OKAY?  🙂  It taught me a few things and I’ll get to that eventually but for now….just trying to stick to the facts!

His Pulmonologist has suggested another sleep study (scheduled later this month) and Mike is VERY receptive to finding a CPAP mask that will work for him.  We already know he has sleep apnea.  He has been kicked out of a lab before because basically it was very clearly and quickly seen that he had it…that he needed a machine….but he has very very very particular about this process.  So…this is a huge triumph as in the past he has been….ummm….well….ya know.  I am ever so hopeful that this will be a game changer and will give him a restful sleep.  He wakes up SO tired and I can see the exhaustion by the time he comes home at night.

Speaking of him coming home at night………I am PROUD to say that he has been going into the office later and leaving every day by 5:30!  This has NEVER happened in the history of our marriage (and likely before) so I am extremely happy that he has taken this drastic measure and has the support of his team at work as well.  Finding a work/life balance is a huge issue for so many and I am very thankful that it didn’t cost my husband more than it did before he made this change.

His first Cardiac Therapy appointment is this week so he will learn more then about what is expected of him exercise and diet wise.  He is already eating better and eating less (portion wise)…drinking more water…trying to make better decisions and just getting more active, but he knows he needs to be guided by this great group of people that specialize in heart patients!  Again, this is a win – if you know my sweet but stubborn hubby.

Okay, without getting all mushy and in my feelings, I just wanted to give y’all the facts you want about “how Mike’s doing”….and I’ll keep you updated.  I cannot tell you how much it means to him and myself to get a text, email, phone call or card that asks about how he is feeling….it really does lift his spirits, and mine too.  We have for sure been blessed by some amazing family and friends.

Bye for now…more later…much much much more!  🙂

JJ

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